Living Donor Resources and Information

Additional Resources
Education
UNOS Transplant Living – In-depth information about becoming a living donor, including which organs can be donated, types of living donation, talking about living donation, the operation, the transplant team, financing living donation and frequently asked questions.
American Society of Transplant Surgeons – Patient education videos describing the process of becoming a living kidney or liver donor.
American Society of Transplantation’s Live Donor Toolkit – Guide for living donors, including financial resources available to assist in the donation process.
National Kidney Foundation’s The Big Ask, The Big Give – Patient education on starting a conversation about living kidney donation, whether you need a kidney or are considering donation.
Live Donor Champion Program – Training program for wait-listed patients and their support person (“champion”) to initiate conversations and spread awareness about renal failure and live donation.
Explore Transplant – Educational programs for transplant patients and living donors to make informed treatment choices.
Organdonor.gov – Public information about organ donation and transplantation.
United Network for Organ Sharing – Public information about organ donation and transplantation.
Financial Assistance
American Transplant Foundation – Nonprofit organization that provides education, peer support and critical financial assistance to living donors.
American Living Organ Donor Fund – Nonprofit organization that provides advice on where to get financial help, and a grant program to help living organ donors once all other sources of assistance have been exhausted.
Georgia Transplant Foundation – Provides support for lost wages if the donor or recipient lives in the state of Georgia.
Iowa Anatomical Gift Public Awareness and Transplantation Fund – Provides support for out-of-pocket costs incurred by living donors and recipients who live in Iowa.
Transplant Recipient International Organization – Nonprofit organization providing support for living donors and organ recipients using United Airlines’ Charity Miles program.
Healthcare Hospitality Network – A network of nonprofit organizations that provide lodging and support services to patients, families and their loved ones who are receiving medical treatment far from their home communities.
Federal Legislation – Federal employees receive 30 days of paid leave for organ donation, in addition to their sick and annual leave (HR 457).
State Legislation – Many states have passed laws that make it easier to become a living donor by providing time off for state and/or private sector employees. This link has a state-by-state listing of legislation.
Other Resources
Help Hope Live – Nonprofit organization to support community-based fundraising for people with unmet medical and related expenses due to cell and organ transplants, living donors or catastrophic injuries and illnesses.
National Foundation for Transplants – Nonprofit organization that helps living donors and transplant candidates create fundraising campaigns online and in their own communities.
Children’s Organ Transplant Association – Nonprofit organization that helps children and young adults who need a life-saving transplant by providing fundraising assistance and family support.
Authorizing Legislation
National Organ Transplant Act: Public Law 98-507 – Federal law passed in 1984 which established the Organ Procurement and Transplantation Network, organ procurement organizations, the scientific registry, and the prohibition of organ purchases.
Organ Donation Recovery and Improvement Act: Public Law 108-216 – Federal law passed in 2004 which authorizes the Department of Health and Human Services to award grants to reimburse living organ donors’ travel and nonmedical expenses, establish public education programs to increase awareness about organ donation, and to develop scientific evidence supporting increased organ donation.
Reimbursement of Travel and Subsistence Expenses Toward Living Organ Donation Eligibility Guidelines: June 19, 2009 – Federal guidelines published in 2009 that define criteria for donor reimbursement, qualifying expenses, the number of prospective donors per recipient, and special provisions.
Patient Testimonials
Learn what you need to know before applying for NLDAC assistance by reading our Program Snapshot
Organ Donor
University of Arizona
ASTS
Arbor Research Collaborative for Health
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